Professional letter to your legislator demonstrating advocacy for legal and professional policies

Scenario
You recently joined American Nurses Association and volunteered to serve on a committee focused on health policy issues. A policy topic of concern for this committee is genetic discrimination. You offered to write a letter to your national legislator in your voting district addressing legal and professional policies associated with genetic discrimination.

Instructions
Write a professional letter to your legislator demonstrating advocacy for legal and professional policies that protect individuals from genetic discrimination.
In this letter, include the following information:
• Describe the concern for genetic discrimination, including a background of the genetic condition and the specific issue at risk for discrimination
• Compare current federal and state policies (legislation) that impact genetic or genomic issues
• Analyze professional nursing policies that address ethical advocacy for the selected genetic or genomic issue
• All content must be supported by providing rationales, examples and evidence from credible sources

  [Your Name] [Your Address] [City, State, Zip Code] [Email Address] [Date] [Legislator's Name] [Legislator's Office Address] [City, State, Zip Code] Dear [Legislator's Name], I hope this letter finds you well. As a member of the American Nurses Association and a dedicated advocate for health equity, I wish to bring to your attention the critical issue of genetic discrimination and urge you to consider policies that protect individuals from its adverse effects. Concern for Genetic Discrimination Genetic discrimination occurs when individuals are treated unfairly due to differences in their DNA that may predispose them to specific health conditions. For instance, individuals with BRCA gene mutations face potential discrimination in employment and insurance coverage based on their increased risk for breast and ovarian cancers. The Genetic Information Nondiscrimination Act (GINA), enacted in 2008, prohibits discrimination by employers and health insurers based on genetic information. However, gaps remain in protection, particularly regarding life insurance and long-term care policies, which can lead to significant barriers for individuals seeking coverage. Comparison of Current Federal and State Policies At the federal level, GINA provides essential safeguards against discrimination based on genetic information. However, state laws vary considerably. Some states have enacted additional protections that exceed GINA’s provisions, while others have no such laws at all. For example, California’s Fair Employment and Housing Act includes prohibitions against discrimination based on genetic characteristics, offering broader protections than GINA. In contrast, many states lack comprehensive laws addressing genetic discrimination, leaving individuals vulnerable to potential bias based on their genetic predispositions. The inconsistency in state policies creates a patchwork of protections that can confuse individuals and healthcare providers alike. Therefore, it is imperative to support legislation that offers uniform protections against genetic discrimination across all states. Nursing Professional Policies on Ethical Advocacy The nursing profession is bound by ethical principles that emphasize respect for all individuals and their right to receive equitable care. The American Nurses Association’s Code of Ethics highlights the nurse’s role in advocating for social justice and addressing health disparities. Nurses are often at the forefront of patient care, making it vital for us to advocate for policies that prevent genetic discrimination. Professional organizations like the National Society of Genetic Counselors advocate for ethical considerations in genetics and emphasize the importance of informed consent and privacy regarding genetic information. Nurses must be equipped to educate patients about their rights related to genetic information and ensure that they are not subjected to discrimination based on their genetic makeup. Call to Action Given the potential consequences of genetic discrimination on individuals' lives and livelihoods, I urge you to support comprehensive legislation that enhances protections against genetic discrimination at both the federal and state levels. This legislation should close existing loopholes in GINA and extend protections to all aspects of insurance and employment. By championing policies that prevent genetic discrimination, we can foster an environment where individuals can seek necessary medical care without fear of repercussions based on their genetic information. This is not just a matter of policy; it is a matter of human dignity and justice. Thank you for considering this critical issue. I look forward to your support in advocating for stronger protections against genetic discrimination. Sincerely, [Your Name] [Your Credentials/Title] [Your Contact Information]  

Sample Answer